Quality of life of diabetic patients is not a new concept in literature. E p i d e m i o i o g y h 1 e1 h a s e r v i c e s p s y c h o s o researc c i a i h nal article validation of a diabetes specific quality of life scale for patients. Reliability and validity of revised and short form versions. This study was aimed to develop a diabetesspecific quality of life questionnaire module dmqol to be in conjunction with the world health. Acrobat only, not adobe reader you can set up a pdf to default to specific scaling or print options. Fryback university of wisconsin retired prepared for economic analysis of nutrition interventions. To evaluate changes in health related quality of life hrql for individuals with type 2 diabetes following the introduction of a new. Linguistic and psychometric validation of the diabetes specific quality of life scale in u. Data sources pubmed, contact with authors for missing information, and author survey for unpublished sf36 data. Validation of a diabetesspecific quality of life scale for patients with type 1 diabetes article pdf available in diabetes care 215.
The development of quality of life instrument for indian. Oct 23, 2003 the quality of life scale qols, created originally by american psychologist john flanagan in the 1970s, has been adapted for use in chronic illness groups. Ireland version of the diabetes specific quality of life scale dsqols for adults with type 1 diabetes. The contentious issue however is whether factors associated in literature with quality of life apply to diabetic patients in uganda. Validation of a diabetesspecific qualityoflife scale. Background diabetes quality of life dqol instrument has been widely used to measure quality of life among diabetes patients.
Methods, research and policy national institutes of health february 23, 2010. Among diabetes specific qol measures, the audit of diabetes dependent quality of life addqol is a widelyused instrument of diabetes specific qol that assesses an individuals perceptions of the impact of diabetes. The purpose of this study is to investigate the specific quality of life of patients with diabetes mellitus. Diabetesspecific tools included the audit of diabetesdependent quality of life, diabetes quality of life, appraisal of diabetes scale ads, and diabetes. English for adults with type 1 diabetes, diabetes care, 20, pp. Validation of a diabetesspecific quality of life scale for patients with type 1 diabetes. Our survey diabetes patients rank tech tools, quality of life. Objective to validate a diabetesspecific quality of life scale and to assess its psychometric properties in a large sample of patients with type 1 diabetes. General quality of life in youth with type 1 diabetes. Healthrelated quality of life in patients with type 1. Brief screening tool for disordered eating in diabetes. Among chronic diseases, diabetes has been a focus of performance measurement for many years, and it stands as one of the first conditions for which disease specific. Jan 09, 2011 thus, applying motivational interviewing techniques 25 to help patients identify their problems and adopt a healthpromoting lifestyle early in a disease course, combined with customized medication or treatment that empowers patients to manage their conditions, may improve their quality of life. Health related quality of life and health status robert m.
May 31, 2018 diabetes mellitus is one of the most prevalent diseases worldwide. Development of diabetesspecific quality of life module to be in. To exit the pdf browser window, click x in the upper right window. Diabetes complications negatively affect quality of life as do depression, aging. Choose file properties, and click the advanced tab. The most widely used disease specific hrqol measure for diabetes is the diabetes quality of life.
Healthrelated quality of life hrqol is an essential health outcome in clinical trials and health care. The aim of this study was to describe how diabetes complications influence the healthrelated quality of life of individuals with diabetes using the individual eq5d dimensions and the eq5d index. I find it difficult to separate my personal life from my life as a helper. This study aimed to develop a revised version of dqol. Scale or resize printed pages in acrobat and reader adobe support.
An assessment of the quality of life of hivaids patients and their families in ghana during the scale up of delivery of antiretroviral treatment. Nov 15, 20 the diabetesmine 20 patient voices survey has found that according to patients, the factors that would most improve their quality of life are not being sufficiently met by diabetes technology. The diabetic foot ulcer scale dfs questionnaire is a specific instrument designed to assess the impact of foot ulcers and their treatment on quality of life in people with diabetes. Development of diabetes specific quality of life module to be in conjunction with the world health organization quality of life scale brief version whoqolbref. Assessing health related quality of life in chronically ill children with the german kindl. The past few decades have witnessed considerable research about healthrelated quality of life hrqol, leading to the development and refinement of a number of generic and disease specific hrqol measures. A total of 184 outpatients with type 2 diabetes were asked to complete the selfadministered ddrqolr scale to confirm its psychometric properties. Patientreported reported patient o outcome measurement u. To assess the quality of diabetes care in a populationbased study, a representative sample of 684 patients with type 1 diabetes was examined.
Quality of life, health status and clinical outcomes in type. The diabetes quality of life dqol measure was devised for the diabetes control and complications trial dcct 42, 43 and the diabetes quality of life. Healthrelated quality of life measurement in type 2 diabetes. News from the kindlquestionnaire a new version for adolescents. Shockingly, more than 1 in 4 people dont even know they have the condition. The distribution of responses and the weights assigned to the impact ratings are shown in table 4. The constructs of the questionnaire were mainly based on these western. Executive summary patientreported outcomes measurement. Assessment of quality of life in patients with type 2. General health status in iranian diabetic patients assessed. Usefulness of the audit of diabetes dependent quality of life addqol questionnaire in patients with diabetes in a multiethnic asian country.
Objective to update and validate a diabetes specific screening tool for disordered eating the diabetes eating problem survey deps in contemporary youth with type 1 diabetes research design and methods a total of 112 youth with type 1 diabetes. Weight losses with lowenergy formula diets in obese patients. To develop both a revised version of the diabetes dietrelated quality of life ddrqolr scale that can be applied to patients with nephropathy and a short form of the ddrqolr. Instructions the questions in this questionnaire begin with a statement followed by two opposite answers. Addqol19 audit of diabetes dependent quality of life. Linguistic and psychometric validation of the diabetes. This study aimed to develop a revised version of dqol instrument that incorporated issues of redundancies in the items and strengthen the basis of validity of the instrument. Quality of life, health status and clinical outcomes in type 2 diabetes patients. The most widely used disease specific hrqol measure for diabetes is the diabetes quality of life dqol measure developed for use in the. Quality of life qol is a frequently employed construct in studies of children with diabetes, and is critical for evaluating health outcomes in clinical trials and for decisionmaking in health care. Reliability and validity of revised and short form. Reporting and interpretation of sf36 outcomes in randomised. Pdf development of diabetesspecific quality of life. Measurement of the construct varies in specific dimensions but includes aspects of physical, emotional, and social wellbeing.
Patientassessed health outcome measures for diabetes. The following questions ask how you feel about your quality of life, health, or other areas of your life. The scale is able to distinguish between patients with different treatment and dietary regimens and to detect. Administration technique selfadministered questionnaire.
Research design and methods to assess the quality of diabetes care in a populationbased study, a representative sample of 684 patients with type 1 diabetes. To construct a type2 diabetes specific quality of life qol tool for asian. A vast array of questionnaires has been used to measure hrqol in diabetes patients, contributing to. Newcastle diabetes symptom questionnaire mccoll, steen et al. Diabetes is a chronic disease associated with micro and macrovascular complications and deterioration in general health status. Diabetes had the greatest impact on freedom to eat mean impact rating. Quality of life whoqol bref world health organization. Understanding and assessing diabetesspecific quality of life.
Outcome tools for diabetesspecific quality of life ncbi. The idss is a selfreport scale with two versions, a 14item version for subjects with type 1 diabetes t1d and a 12item version for subjects with type 2 diabetes t2d. Pdf quality of life in people with type 2 diabetes in relation to. Various instruments assessing the qol related to diabetes have been used. Objective to develop a linguistically and psychometrically validated u. Executive summary according to the centers for disease control, 29 million people in the u.
Then click on save, name the file and identify the drive where you want to save the file. The following are the supplementary data to this article. We mailed a questionnaire to 1,000 individuals with diabetes type 1 and 2 in norway. Diabetesdependent quality of life addqol and affecting. It is an instrument that has extensive applications for population health surveys, comparisons of relative burden of diseases, and differentiation of health benefits across groups produced by diverse interventions. Cigna s quality improvement program helps to improve the medical care we provide our customers. Assessment of quality of life in patients with type 2 diabetes mellitus in oman masoud y. Assessment of quality of life in type ii diabetic patients.
What is diabetesspecific quality of life qol, how important a concept is it. The questionnaire had questions about sociodemographic characteristics, use of health care, diabetes. The dsqols is a reliable and valid measure of diabetesspecific quality of life. Numbers extend from one extreme answer to its opposite. Developed in the early 1990s, evidence for reliability, validity and well responsiveness is well established for the english version and is becoming established for translations. To validate a diabetes specific quality of life scale and to assess its psychometric properties in a large sample of patients with type 1 diabetes. To save the file, click on file in the acrobat menu bar. Patients at the outpatient clinics of a university hospital completed measures of generic health status sf12, diabetesspecific quality of life audit of diabetes dependent quality of life addqol, and depressive symptoms center for. Brief description of instrument diabetes specific measure of health related quality of life for use with adults and adolescents. This questionnaire for adults with diabetes is an individualised measure of the impact of diabetes on quality of life.
Linguistic and psychometric validation of the diabetes specific quality of life scale dsqols in u. It is a crosssectional study, which was conducted from august 228, 2012 in two basic health units, in the interior of sao paulo. The default option in the page scaling popup menu is shrink to printable area. A total of 184 outpatients with type 2 diabetes were asked to complete the selfadministered ddrqolr scale. Evaluation of the application of the diabetes quality of life. A comparison of general and diabetesspecific measures, and support for a unitary diabetes quality of life construct t. Pdf validation of a diabetesspecific qualityoflife. Diabetesspecific qualityoflife scale how is diabetes. To assess the quality of diabetes care in a populationbased study, a representative sample of 684 patients with type 1 diabetes. I will read out each question to you, along with the response options.
Objectiveto evaluate selfreport and parent proxy report of childteen general quality of life in youth with type 1 diabetes, compare their responses with those of a general pediatric population, and identify relationships between diabetes management, diabetes related family behavior, and diabetes specific family conflict with quality of life in youth with type 1 diabetes. Scale or resize printed pages in acrobat and reader. Validation of a diabetesspecific qualityoflife scale for. Quality of life in patients with diabetes using the diabetes. Development of diabetesspecific quality of life module to. Development and validation of the diabetes quality of life.
A prospective descriptive study was conducted over 6 months, after taking ethical committee approval. Recent shortform quality of life qol measures, such as the medical outcomes study sf36,35 short hypertensionspecific qol form,36 short coronary artery disease specific qol form,37 and short mentalhealth sf36,38 have been successfully developed, in which the goal was to preserve the full item content range, scale structure, reliability, validity, and responsiveness of the original instruments. Diabetes complications negatively affect quality of life. There are many ways we evaluate our quality improvement program. Addqol, audit of diabetesdependent quality of life. Objectivethe purpose of this study was to develop a questionnaire that measures patients perceptions of the impact of diabetic peripheral neuropathy and foot ulcers on their quality of life. Quality of life instrument for indian diabetes patients qolid. Furthermore, diabetes distress had a significant effect on hrqol. The main objective of this study was to assess quality of life qol and treatment satisfaction in a group of patients with type 1 diabetes t1d and explore their needs regarding and their perception of qol living with diabetes. The pedsql in type 1 and type 2 diabetes diabetes care. We devised and validated a patientcentered quality of life. Although there are generally satisfactory ways of measuring the frequency and severity of diseases this is not the case in so far as the measurement of well being and quality of life. The addqol questionnaire is a conditionspecific outcome measure suitable for. Pdf validation of a diabetesspecific qualityoflife scale.
The scale is able to distinguish between patients with different treatment and dietary regimens and to detect social inequities. Diabetes specific quality of life scale listed as dsqols. Pediatric quality of life inventory pedsql scaling and scoring of the ppeeddiiaattrriicc qquuaalliittyy ooff lliiffee iinnvveennttoorryy. Related quality of life measurement in type 2 diabetes. I think that i might have been affected by the traumatic stress of those i help. The diabetes specific quality of life scale dsqols is a new instrument with 64 items, of which 10 focus on treatment goals, 10 on treatment satisfaction, and 44 on the perceived burden of diabetes. Please circle the number between 0 and 10 which is most true for you. Type 2 diabetes has significant adverse effects on healthrelated quality of life hrqol. This study examines relationships between patient reported outcomes pros and clinical outcomes in type 2 diabetes mellitus t2dm. Development and validation of the asian diabetes quality of life. I am not as productive at work because i am losing sleep over traumatic experiences of a person i help. Assessing quality of life for new diabetes treatments and. An audit of diabetesdependent quality of life addqol in. Another 86 million more than 1 out of every 3 adults have prediabetes.
E p i d e m i o i o g y h 1 e1 h a s e r v i c e s p s y c h o s o researc c i a i h nal article validation of a diabetesspecific quality of life scale for patients. An assessment of the quality of life of hivaids patients and. A vast array of questionnaires has been used to measure hrqol in diabetes patients, contributing to the difficulty of selecting instruments for future research. Jan 12, 2009 objective to determine how often health surveys and quality of life evaluations reach different conclusions from those of primary efficacy outcomes and whether discordant results make a difference in the interpretation of trial findings. If you are unsure about which response to give to a question, the first response you think of is often the best one. Please choose the answer that appears most appropriate. The development and validation of a neuropathy and foot. Diabetes selfefficacy questionnaire dseq outcome measurement for diabetes education effective outcome measurement of diabetes education programs requires valid and reliable. This study was aimed to develop a diabetes specific quality of life questionnaire module dmqol to be in conjunction with the world health organization quality of life scale.
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